Awareness & Advocacy
Sjögren's Syndrome Advocacy
The Sjögren's Society of Canada is committed to advocating for the needs of Sjögren's patients and to improve conditions for people living with Sjögren's syndrome. This includes better patient care and education, better access to medications and treatments, increased public awareness and research into, and funding for, Sjögren's Syndrome provincially and federally. Individuals also play a critical role in achieving these goals.
What is an Advocate?
An advocate is someone who helps themselves or helps other people or groups understand their needs. An advocate informs and educates the needs of Sjögren's syndrome patients and their healthcare providers and funders. You and I are advocates when we take control over a situation and attempt to effect change.
How You Can Help
We encourage people living with Sjögren's syndrome and their families and friends to learn as much as possible about Sjögren's and communicate our needs and concerns to your elected officials. Develop a relationship with your elected representatives and make your concerns known about issues that impact your everyday life living with Sjögren's syndrome.
- Write a letter, send an email, make a phone call or visit your provincial or elected representative in Ottawa.
Click here to learn more. - Share Your Story!
Click here to learn more.
Help us to speak with one strong voice and together we will build a stronger position for patient education, access to research and funding medical research into Sjögren's syndrome.
Share Your Story
Personal stories are powerful persuasive tools for the public, government officials and their staff. You may wish to share your story with the Society to use or communicate your account directly to your representative. Tell us your story!
Each person affected by Sjögren's syndrome has an important story to tell. We encourage you to share your personal story of the challenges you or your loved ones face everyday living with Sjögren's syndrome.
- The Sjögren's Society of Canada collects stories to utilize with public policy makers, fellow advocates, and the public.
Click here to send us your story. - Send your story to your federal or provincial representative directly.
Click here to find out more and to locate your federal representative. - To medical professionals: Communicate your experiences with Sjögren's syndrome patients and how this disease impacts your patients and their quality of life. Discuss the need for more research into Sjögren's to better understand the disease, the need to identify patients earlier and improve outcomes for patients.
Help us make a difference and spread the news about this little known disease, Sjögren's Syndrome affecting up to 430,000 Canadians!